Hillary Savoie’s writing was featured on Motherlode, the New York Time parenting blog. In her post on June 28th she reveals some wonderful news…
Read ArticleOn December 5th in Philadelphia about 85 guests–including seven children with SCN8A, 35 family members, and over 50 researchers and clinicians–met for the Cute…
Read ArticleWe are thrilled to learn that Dr. Ann Poduri, who is an awardee of two research grants from The Cute Syndrome Foundation for her…
Read ArticleEsmé spent several days recently with world-renowned photographer Brent Stirton, who was documenting her daily life–from therapies, to doctors visits, to tube-feeding, to playing with…
Read ArticleCheck out our gallery of photos up at the Positive Exposure website! These are from our photo shoot last fall. http://positiveexposure.org/gallery/#ad-image-1 We are thrilled with…
Read ArticleIt may sound a bit odd, but currently one of the best hopes for finding safer, more effective treatment for PCDH19 Female Limited Epilepsy…
Read ArticleThe Cute Syndrome, with our partners Insieme per la Ricerca PCDH19, is thrilled to announce the first internationally funded PCDH19 research grant competition funding a…
Read ArticleWe had a chance to speak with WNYT News Channel 13 reporter Benita Zahn about Esmé and The Cute Syndrome. They put together a…
Read ArticleTCS’s partners Insieme per la Ricerca PCDH19 (Together for PCDH19 Research) held their second annual PCDH19 World Conference. TCS was very pleased to attend this important…
Read ArticleWe are so very proud that the hard work of our partner organization in Italy, Insieme per la ricerca PCDH19 – ONLUS, has contributed an upcoming drug…
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