In June The Cute Syndrome Foundation received a Rising Tides Grant from Child Neurology Foundation to lift a social and emotional support program off…
Read Article2020 has been quite a year. I know we are all disappointed about not being able to all be together in person for our…
Read ArticleThe Cute Syndrome Foundation has received a fantastic impact report from Dr. John Schreiber at Children’s National on his clinical research which we funded in 2019.…
Read ArticleThis is a sad story. Perhaps it is two sad stories—stories that begin with the loss of two boys. But it is also a…
Read ArticleWhen we heard about The Cute Syndrome Foundation’s Annual Gathering, I thought, oh, that would be so neat, but there’s no way we could make…
Read ArticleHelp us continue to support the SCN8A community through events like this Gathering. DONATE NOW A week ago today the SCN8A community started arriving…
Read ArticleIn partnership with The Cute Syndrome Foundation, John M. Schreiber, MD from Children’s National Hospital is collecting survey data from health care providers. The…
Read ArticleOur SCN8A Annual Clinician, Researcher, and Family Gathering will be held in conjunction with the American Epilepsy Society Conference on December 6-7, 2019 at…
Read ArticleThe 2019 SCN8A Research Roundtable took place in Chapel Hill, North Carolina in July. This event brought together a select group of key SCN8A…
Read ArticleThis year a very special team will be walking at the Walk to End Epilepsy hosted by Epilepsy Foundation of Metropolitan New York: Luke’s…
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