Two weeks ago, Praxis Precision Medicines invited TCSF to their home base in Cambridge MA to talk to them about SCN8A community and to…
Read ArticleTCSF Founder and Director, Hillary Savoie, with Xenon’s VP of Biology, JP Johnson Jr, at Xenon during her visit in April 2019. Last week,…
Read ArticleThe Cute Syndrome Foundation is thrilled to share the awarding of a clinical research grant, originally announced at our 2018 SCN8A Clinician, Researcher, and…
Read ArticleThe Cute Syndrome Foundation is announcing the departure of Juliann Bradish, PharmD, as our Co-executive Director. Juliann will be remaining on as a volunteer…
Read ArticleOn November 30 and December 1st The Cute Syndrome Foundation held our fourth annual SCN8A Clinician, Researcher, and Family Gathering, in conjunction with the…
Read ArticleWe are so very proud that the hard work of our partner organization in Italy, Insieme per la ricerca PCDH19 – ONLUS, has contributed an upcoming drug…
Read ArticleTCS’s partners Insieme per la Ricerca PCDH19 (Together for PCDH19 Research) held their second annual PCDH19 World Conference. TCS was very pleased to attend this important…
Read ArticleThis week we were so lucky to have Saratoga Springs, NY photographer Tracey Buyce volunteer her time to do a photo shoot with Esmé…
Read ArticleEarlier this week Hillary, Mel, and Esmé traveled to Washington DC for an SCN8A conference organized by our partners Wishes for Elliott to learn more about…
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