TCS’s partners Insieme per la Ricerca PCDH19 (Together for PCDH19 Research) held their second annual PCDH19 World Conference. TCS was very pleased to attend this important…
Read ArticleThe Cute Syndrome, with our partners Insieme per la Ricerca PCDH19, is thrilled to announce the first internationally funded PCDH19 research grant competition funding a…
Read ArticleThis week we were so lucky to have Saratoga Springs, NY photographer Tracey Buyce volunteer her time to do a photo shoot with Esmé…
Read ArticleWe had a chance to speak with WNYT News Channel 13 reporter Benita Zahn about Esmé and The Cute Syndrome. They put together a…
Read ArticleIt may sound a bit odd, but currently one of the best hopes for finding safer, more effective treatment for PCDH19 Female Limited Epilepsy…
Read ArticleCheck out our gallery of photos up at the Positive Exposure website! These are from our photo shoot last fall. http://positiveexposure.org/gallery/#ad-image-1 We are thrilled with…
Read ArticleEsmé spent several days recently with world-renowned photographer Brent Stirton, who was documenting her daily life–from therapies, to doctors visits, to tube-feeding, to playing with…
Read ArticleEsmé was able to visit some of the members of the Super Cute Troop in mid-August. Super Eric and Super Chloe are a brother…
Read ArticleThis September we held our second annual Cute Syndrome Catch the Cute Cocktail Party Fundraiser. The event took place on a beautiful Sunday afternoon,…
Read ArticleIn honor of PCDH19 Epilepsy Awareness Day on November 9th and Epilepsy Awareness Month, The Cute Syndrome has released a new PCDH19 Epilepsy Awareness…
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