Dear SCN8A Community, More than thirteen years ago, my daughter Esmé’s medical journey brought our family into the rare disease community and inspired me…
Read ArticleThe SCN8A community is one that unfortunately suffers devastating losses on a regular basis. In part one of this two-part series, Costa and Ghaith…
Read ArticleThe SCN8A community is one that unfortunately suffers devastating losses on a regular basis. In part two of this two-part series, TCSF volunteer Karen Varner…
Read ArticleIn honor of our 11th anniversary, The Cute Syndrome Foundation has removed the word “epilepsy” from the SCN8A heart in our logo to recognize…
Read ArticleTen years ago, when I started TCSF my daughter Esmé was seizing on average 15 times a week and struggling with extreme medical fragility.…
Read ArticleAll About Kacie:Have you ever felt that you’ve lived multiple lives within one lifetime? For example, the person you were while in high school…
Read ArticleHello SCN8A Community, Founding The Cute Syndrome Foundation and running it these last almost 9 years has been one of the greatest honors of…
Read ArticleHave you ever wondered what TCSF is? Where did it come from and who started it? With so many new faces in the community…
Read ArticleLast year Luke Pitino, who was diagnosed with SCN8A epilepsy in his first year of life, and his family raised $71,000 for the Epilepsy…
Read ArticleThis is a sad story. Perhaps it is two sad stories—stories that begin with the loss of two boys. But it is also a…
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