Dear SCN8A Community, More than thirteen years ago, my daughter Esmé’s medical journey brought our family into the rare disease community and inspired me…
Read ArticleThe 2025 SCN8A Annual Gathering, held in Atlanta, GA, was a powerful reminder of what makes this community so extraordinary. Families, clinicians, researchers, and industry…
Read ArticleBy Kacie CraigExecutive Director, The Cute Syndrome Foundation In May of this year, I had the honor of representing The Cute Syndrome Foundation at…
Read ArticleThe Cute Syndrome Foundation’s 10th Annual SCN8A Clinician, Researcher, and Family Gathering was a powerful and inspiring event, bringing together families, researchers, and clinicians…
Read ArticleThe SCN8A community is one that unfortunately suffers devastating losses on a regular basis. In part one of this two-part series, Costa and Ghaith…
Read ArticleThe SCN8A community is one that unfortunately suffers devastating losses on a regular basis. In part two of this two-part series, TCSF volunteer Karen Varner…
Read ArticleIn honor of our 11th anniversary, The Cute Syndrome Foundation has removed the word “epilepsy” from the SCN8A heart in our logo to recognize…
Read ArticleFebruary 9, 2024, marked an important occasion for the global community, particularly for those whose lives have been touched by SCN8A, a rare disorder…
Read ArticleAmidst the enchanting atmosphere of Orlando, Florida, The Cute Syndrome Foundation (TCSF) hosted its 9th Annual Clinician, Researcher, and Family Gathering from December 1st…
Read ArticleIn 2020 during the COVID-19 pandemic, The Cute Syndrome Foundation (TCSF) recognized that most families were in crisis mode and desperately needed to feel…
Read ArticleJoin the TCSF Family Network to receive updates on educational programming, grants, clinical trials, and more.