The Cute Syndrome Foundation is celebrating the First International SCN8A Awareness Day on February 9th with the other family-based advocacy organizations including Ajude o Rafa and Wishes…
Read ArticlePlay is a constant that still remains ever-changing, reinvented daily by kids and limited only by their boundless imaginations. But there is an artificial…
Read ArticleThe Cute Syndrome Foundation held our second annual SCN8A Epilepsy Research, Clinician, and Family Gathering on Friday December 2nd, in conjunction with the American…
Read ArticleIn January 2016, as a collaborative effort with our Brazilian partners, Ajude o Rafa, The Cute Syndrome Foundation awarded $25,000 the 2016 SCN8A Epilepsy Research Grant…
Read ArticleOn December 5th in Philadelphia about 85 guests–including seven children with SCN8A, 35 family members, and over 50 researchers and clinicians–met for the Cute…
Read ArticleThe founder and director of the Cute Syndrome Foundation has published her second short book, titled Whoosh. Whoosh tells the story of a medical emergency…
Read ArticleThere is fantastic news for the treatment of PCDH19 Epilepsy. The University of Adelaide reports on the work of Prof. Josef Gecz, whose PCDH19…
Read ArticleInsieme per la Ricerca PCDH19 and The Cute Syndrome Foundation are thrilled to announce that we have awarded a $20,000 grant to Dr. Jack…
Read ArticleHillary Savoie’s writing was featured on Motherlode, the New York Time parenting blog. In her post on June 28th she reveals some wonderful news…
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