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Announcement Annual Gathering Awareness Day Community Research

Announcement December 22, 2018

TCSF Founder Hillary Savoie on Motherlode, the New York Times parenting blog

Hillary Savoie’s writing was featured on Motherlode, the New York Time parenting blog. In her post on June 28th she reveals some wonderful news…

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Announcement December 22, 2018

TCSF work with SCN8A Partnership covered on Scientific American Blog

Today a blog post on Scientific American told the story of how families affected by SCN8A mutations are coming together to help push forward research agendas…

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Research December 22, 2018

Marinus Pharma will be pursuing a PCDH19 trial with their drug Ganaxolone.

We are so very proud that the hard work of our partner organization in Italy, Insieme per la ricerca PCDH19 – ONLUS, has contributed an upcoming drug…

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Author: <span>ae7fad26_admin</span>

TCSF Founder Hillary Savoie on Motherlode, the New York Times parenting blog

TCSF work with SCN8A Partnership covered on Scientific American Blog

Marinus Pharma will be pursuing a PCDH19 trial with their drug Ganaxolone.

Stay up to date with the Cute Syndrome Foundation

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