Insieme per la Ricerca PCDH19 and The Cute Syndrome Foundation are thrilled to announce that we have awarded a $20,000 grant to Dr. Jack…
Read ArticleThere is fantastic news for the treatment of PCDH19 Epilepsy. The University of Adelaide reports on the work of Prof. Josef Gecz, whose PCDH19…
Read ArticleThe founder and director of the Cute Syndrome Foundation has published her second short book, titled Whoosh. Whoosh tells the story of a medical emergency…
Read ArticleOn December 5th in Philadelphia about 85 guests–including seven children with SCN8A, 35 family members, and over 50 researchers and clinicians–met for the Cute…
Read ArticleIn January 2016, as a collaborative effort with our Brazilian partners, Ajude o Rafa, The Cute Syndrome Foundation awarded $25,000 the 2016 SCN8A Epilepsy Research Grant…
Read ArticleThe Cute Syndrome Foundation held our second annual SCN8A Epilepsy Research, Clinician, and Family Gathering on Friday December 2nd, in conjunction with the American…
Read ArticlePlay is a constant that still remains ever-changing, reinvented daily by kids and limited only by their boundless imaginations. But there is an artificial…
Read ArticleThe Cute Syndrome Foundation is celebrating the First International SCN8A Awareness Day on February 9th with the other family-based advocacy organizations including Ajude o Rafa and Wishes…
Read ArticleWe are so very proud that the hard work of our partner organization in Italy, Insieme per la ricerca PCDH19 – ONLUS, has contributed an upcoming drug…
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