Two weeks ago, Praxis Precision Medicines invited TCSF to their home base in Cambridge MA to talk to them about SCN8A community and to…
Read ArticleTCSF Founder and Director, Hillary Savoie, with Xenon’s VP of Biology, JP Johnson Jr, at Xenon during her visit in April 2019. Last week,…
Read ArticleThe Cute Syndrome Foundation is thrilled to share the awarding of a clinical research grant, originally announced at our 2018 SCN8A Clinician, Researcher, and…
Read ArticleThe Cute Syndrome Foundation is announcing the departure of Juliann Bradish, PharmD, as our Co-executive Director. Juliann will be remaining on as a volunteer…
Read ArticleOn November 30 and December 1st The Cute Syndrome Foundation held our fourth annual SCN8A Clinician, Researcher, and Family Gathering, in conjunction with the…
Read ArticleWe are so very proud that the hard work of our partner organization in Italy, Insieme per la ricerca PCDH19 – ONLUS, has contributed an upcoming drug…
Read ArticleThe Cute Syndrome Foundation is celebrating the First International SCN8A Awareness Day on February 9th with the other family-based advocacy organizations including Ajude o Rafa and Wishes…
Read ArticlePlay is a constant that still remains ever-changing, reinvented daily by kids and limited only by their boundless imaginations. But there is an artificial…
Read ArticleThe Cute Syndrome Foundation held our second annual SCN8A Epilepsy Research, Clinician, and Family Gathering on Friday December 2nd, in conjunction with the American…
Read ArticleIn January 2016, as a collaborative effort with our Brazilian partners, Ajude o Rafa, The Cute Syndrome Foundation awarded $25,000 the 2016 SCN8A Epilepsy Research Grant…
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