There is fantastic news for the treatment of PCDH19 Epilepsy. The University of Adelaide reports on the work of Prof. Josef Gecz, whose PCDH19…
Read ArticleHillary Savoie’s writing was featured on Motherlode, the New York Time parenting blog. In her post on June 28th she reveals some wonderful news…
Read ArticleToday a blog post on Scientific American told the story of how families affected by SCN8A mutations are coming together to help push forward research agendas…
Read ArticleThe founder and director of the Cute Syndrome Foundation has published her first short book, titled Around And Into The Unknown. Around and Into the…
Read ArticleWe are thrilled to learn that Dr. Ann Poduri, who is an awardee of two research grants from The Cute Syndrome Foundation for her…
Read ArticleIn honor of PCDH19 Epilepsy Awareness Day on November 9th and Epilepsy Awareness Month, The Cute Syndrome has released a new PCDH19 Epilepsy Awareness…
Read ArticleThis September we held our second annual Cute Syndrome Catch the Cute Cocktail Party Fundraiser. The event took place on a beautiful Sunday afternoon,…
Read ArticleEsmé was able to visit some of the members of the Super Cute Troop in mid-August. Super Eric and Super Chloe are a brother…
Read ArticleEsmé spent several days recently with world-renowned photographer Brent Stirton, who was documenting her daily life–from therapies, to doctors visits, to tube-feeding, to playing with…
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