In partnership with The Cute Syndrome Foundation, John M. Schreiber, MD from Children’s National Hospital is collecting survey data from health care providers. The…
Read ArticleTwo weeks ago, Praxis Precision Medicines invited TCSF to their home base in Cambridge MA to talk to them about SCN8A community and to…
Read ArticleThe Cute Syndrome Foundation is announcing the departure of Juliann Bradish, PharmD, as our Co-executive Director. Juliann will be remaining on as a volunteer…
Read ArticleWe are thrilled to learn that Dr. Ann Poduri, who is an awardee of two research grants from The Cute Syndrome Foundation for her…
Read ArticleIn honor of PCDH19 Epilepsy Awareness Day on November 9th and Epilepsy Awareness Month, The Cute Syndrome has released a new PCDH19 Epilepsy Awareness…
Read ArticleThis September we held our second annual Cute Syndrome Catch the Cute Cocktail Party Fundraiser. The event took place on a beautiful Sunday afternoon,…
Read ArticleEsmé was able to visit some of the members of the Super Cute Troop in mid-August. Super Eric and Super Chloe are a brother…
Read ArticleEsmé spent several days recently with world-renowned photographer Brent Stirton, who was documenting her daily life–from therapies, to doctors visits, to tube-feeding, to playing with…
Read ArticleCheck out our gallery of photos up at the Positive Exposure website! These are from our photo shoot last fall. http://positiveexposure.org/gallery/#ad-image-1 We are thrilled with…
Read ArticleIt may sound a bit odd, but currently one of the best hopes for finding safer, more effective treatment for PCDH19 Female Limited Epilepsy…
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