Events

Epilepsy affects many individuals and families in our SCN8A community, shaping daily life in ways both seen and unseen. This month, we're raising awareness by creating special profile frames and […]

Speakers: Dr. Nancy McNamara, MD, Division Chief of Pediatric Neurology, Corewell Health East Monika Jones, JD, Executive Director & Founder, Pediatric Epilepsy Surgery Alliance Description: Join The Cute Syndrome Foundation and guest speakers from the Pediatric Epilepsy Surgery Alliance (PESA) for an educational webinar on neuromodulation and surgical options for SCN8A-related epilepsy. In this session, […]

Nominate your doctor for the Champions for Understanding, Treating, Investigating, and Empowering those with SCN8A (CUTIES) Award. This award will be presented to a clinician who has: Exceeded expectations of […]

People of all ages with epilepsy and their families and friends are invited to attend the Epilepsy Day at Disneyland Expo, featuring non-Profit support groups, epilepsy centers, drug and related product manufacturers, seizure dogs and their trainers, and epilepsy professionals from around the world. Come by the expo to visit The Cute Syndrome Foundation's table […]

People of all ages with epilepsy and their families and friends are invited to attend the Epilepsy Day at Disneyland Expo, featuring non-Profit support groups, epilepsy centers, drug and related product manufacturers, seizure dogs and their trainers, and epilepsy professionals from around the world. Come by the expo to visit The Cute Syndrome Foundation's table […]

Living with 8A often means spending hours navigating insurance companies, coordinating medical care, sending difficult emails to doctors, completing paperwork, and managing countless other tasks that most people never see. These responsibilities can feel overwhelming—but they don't have to be faced alone. Community Power Hour is a virtual coworking session that offers accountability, connection, and […]

Join the TCSF Book Club for an engaging discussion on our latest book selection! Whether you’re an avid reader or just looking to connect with the SCN8A community, this is a great way to unwind and share thoughts. Check the support group for the latest book announcements and discussion topics! If you’d like help obtaining […]

Join us in Denver, CO, on December 4th-5th, 2026, for the 2026 SCN8A Annual Gathering! Check out the Annual Gathering page for more information.