All Day

Epilepsy Awareness Month

Epilepsy affects many individuals and families in our SCN8A community, shaping daily life in ways both seen and unseen. This month, we're raising awareness by creating special profile frames and […]

Research and Resources Roundtable Series | Epilepsy Surgery Saves Lives: Exploring Neuromodulation Options (VNS, RNS, DBS) for SCN8A

Speakers: Dr. Nancy McNamara, MD, Division Chief of Pediatric Neurology, Corewell Health East Monika Jones, JD, Executive Director & Founder, Pediatric Epilepsy Surgery Alliance Description: Join The Cute Syndrome Foundation and guest speakers from the Pediatric Epilepsy Surgery Alliance (PESA) for an educational webinar on neuromodulation and surgical options for SCN8A-related epilepsy. In this session, […]