-
Description: Join the TCSF Book Club for an engaging discussion on our latest book selection! Whether you’re an avid reader or just looking to connect with the SCN8A community, this […]
35 events found.
Events
Calendar of Events
|
Monday
|
Tuesday
|
Wednesday
|
Thursday
|
Friday
|
Saturday
|
Sunday
|
|---|---|---|---|---|---|---|
1 event, |
0 events,
|
0 events,
|
2 events,Join The Cute Syndrome Foundation’s 12th Annual Virtual Run, Roll & Stroll! Walk, run, or roll 1 mile or a 5K from anywhere, on your own time, while raising awareness and funds for the SCN8A community. Register as an individual racer or create a team! Visit runsignup.com/tcsfrace to register.
$10
-
Those who have lost a child to SCN8A are invited to join us for a heartfelt conversation. Whether it’s reaching out to a friend, navigating family dynamics, or just saying […] |
|||
2 events,
-
Join TCSF and Dr. Sunanjay Bajaj to learn about a study exploring the non-seizure symptoms of SCN8A-related disorders, including movement, behavior, and communication. Dr. Bajaj will explain what researchers hope […] |
||||||
2 events,
-
Join Blair Young-Whitworth, Director of Family Education and Engagement at Courageous Parents Network, for an introduction to valuable resources designed to support families navigating the challenges of serious childhood illness […] |
2 events,Call for Annual “Faces of SCN8A” Banner Submissions Every year TCSF creates a banner with photos of all SCN8A patients who submit a current photo. The banner is displayed at the Annual SCN8A Researcher, Clinician, and Family Gathering, as well as on social media. Please fill out this form and provide a photo even if […] |
2 events,
-
Take a break and join us for our monthly Chaos, Coffee & Chitchat Club! This hour-long, volunteer-led meetup is designed for SCN8A caregivers to come exactly as you are—no structure, […] |
||||
3 events,
-
Living with 8A often means spending hours navigating insurance companies, coordinating medical care, sending difficult emails to doctors, completing paperwork, and managing countless other tasks that most people never see. […] |
||||||
2 events,
-
Join the TCSF Book Club for an engaging discussion on our latest book selection! Whether you’re an avid reader or just looking to connect with the SCN8A community, this is a great way to unwind and share thoughts. Check the support group for the latest book announcements and discussion topics! If you’d like help obtaining […] |
1 event,Epilepsy affects many individuals and families in our SCN8A community, shaping daily life in ways both seen and unseen. This month, we're raising awareness by creating special profile frames and collecting and sharing stories from our community. We invite you to share a photo, a challenge you've faced, a milestone you've celebrated, or something you […] |