Events

Join The Cute Syndrome Foundation’s 12th Annual Virtual Run, Roll & Stroll! Walk, run, or roll 1 mile or a 5K from anywhere, on your own time, while raising awareness […]

Those who have lost a child to SCN8A are invited to join us for a heartfelt conversation. Whether it’s reaching out to a friend, navigating family dynamics, or just saying […]

Join TCSF and Dr. Sunanjay Bajaj to learn about a study exploring the non-seizure symptoms of SCN8A-related disorders, including movement, behavior, and communication. Dr. Bajaj will explain what researchers hope […]

Join Blair Young-Whitworth, Director of Family Education and Engagement at Courageous Parents Network, for an introduction to valuable resources designed to support families navigating the challenges of serious childhood illness […]

Call for Annual “Faces of SCN8A” Banner Submissions Every year TCSF creates a banner with photos of all SCN8A patients who submit a current photo. The banner is displayed at […]

Take a break and join us for our monthly Chaos, Coffee & Chitchat Club! This hour-long, volunteer-led meetup is designed for SCN8A caregivers to come exactly as you are—no structure, […]

Living with 8A often means spending hours navigating insurance companies, coordinating medical care, sending difficult emails to doctors, completing paperwork, and managing countless other tasks that most people never see. […]

Join the TCSF Book Club for an engaging discussion on our latest book selection! Whether you’re an avid reader or just looking to connect with the SCN8A community, this is a great way to unwind and share thoughts. Check the support group for the latest book announcements and discussion topics! If you’d like help obtaining […]

Epilepsy affects many individuals and families in our SCN8A community, shaping daily life in ways both seen and unseen. This month, we're raising awareness by creating special profile frames and […]

Join Dr. Lauren Treat and Dr. Anna Leigh McVicar of Children’s Hospital Colorado for a family-friendly introduction to dysautonomia and how it can affect some children with neurodevelopmental disorders like SCN8A. Through a brief overview and real-world case examples, we’ll explore how autonomic symptoms can present, what families may notice, and how these symptoms may […]

Join The Cute Syndrome Foundation for our 12th Annual SCN8A Clinician, Researcher, and Family Gathering in Denver, Colorado, on December 4–5, 2026! This annual event brings together SCN8A families, clinicians, […]