If your family would like to attend the 2026 SCN8A Clinician, Researcher, and Family Gathering in Denver, Colorado, on December 4-5, but needs help with travel costs, we encourage you to apply for the Dr. Mandy Harris Travel Grant. Visit the Travel Grant page for additional details. Applications are open from August 1st to September […]
Living with SCN8A often means spending hours navigating insurance companies, coordinating medical care, sending difficult emails to doctors, completing paperwork, and managing countless other tasks that most people never see. […]
Our virtual Bereavement Support Group offers a compassionate, confidential space for bereaved parents to connect with others who understand the unique experience of grief after losing a child to an […]
Join the TCSF Book Club for an engaging discussion on our latest book selection! Whether you’re an avid reader or just looking to connect with the SCN8A community, this is […]
Description:Take a break and join us for our monthly Chaos, Coffee & Chitchat Club! This hour-long, volunteer-led meetup is designed for SCN8A caregivers to come exactly as you are—no structure, […]
Description: Living with 8A often means spending hours navigating insurance companies, coordinating medical care, sending difficult emails to doctors, completing paperwork, and managing countless other tasks that most people never […]
Description: Join the TCSF Book Club for an engaging discussion on our latest book selection! Whether you’re an avid reader or just looking to connect with the SCN8A community, this […]
Join The Cute Syndrome Foundation’s 12th Annual Virtual Run, Roll & Stroll! Walk, run, or roll 1 mile or a 5K from anywhere, on your own time, while raising awareness […]
Those who have lost a child to SCN8A are invited to join us for a heartfelt conversation. Whether it’s reaching out to a friend, navigating family dynamics, or just saying […]
Join TCSF and Dr. Sunanjay Bajaj to learn about a study exploring the non-seizure symptoms of SCN8A-related disorders, including movement, behavior, and communication. Dr. Bajaj will explain what researchers hope […]
Join Blair Young-Whitworth, Director of Family Education and Engagement at Courageous Parents Network, for an introduction to valuable resources designed to support families navigating the challenges of serious childhood illness […]
Call for Annual “Faces of SCN8A” Banner Submissions Every year TCSF creates a banner with photos of all SCN8A patients who submit a current photo. The banner is displayed at […]