Events

Join us anywhere, anytime between October 3rd and October 31st, 2026, for a 5K or 1-mile virtual race for SCN8A awareness!

Take a break and join us for our monthly Chaos, Coffee & Chitchat Club! This hour-long, volunteer-led meetup is designed for SCN8A caregivers to come exactly as you are—no structure, no […]

Living with SCN8A often means spending hours navigating insurance companies, coordinating medical care, sending difficult emails to doctors, completing paperwork, and managing countless other tasks that most people never see. […]

Our virtual Bereavement Support Group offers a compassionate, confidential space for bereaved parents to connect with others who understand the unique experience of grief after losing a child to an […]

Join the TCSF Book Club for an engaging discussion on our latest book selection! Whether you’re an avid reader or just looking to connect with the SCN8A community, this is […]

Description:Take a break and join us for our monthly Chaos, Coffee & Chitchat Club! This hour-long, volunteer-led meetup is designed for SCN8A caregivers to come exactly as you are—no structure, […]

Description: Living with 8A often means spending hours navigating insurance companies, coordinating medical care, sending difficult emails to doctors, completing paperwork, and managing countless other tasks that most people never […]

Description: Join the TCSF Book Club for an engaging discussion on our latest book selection! Whether you’re an avid reader or just looking to connect with the SCN8A community, this […]

Those who have lost a child to SCN8A are invited to join us for a heartfelt conversation. Whether it’s reaching out to a friend, navigating family dynamics, or just saying […]

Join TCSF and Dr. Sunanjay Bajaj to learn about a study exploring the non-seizure symptoms of SCN8A-related disorders, including movement, behavior, and communication. Dr. Bajaj will explain what researchers hope […]

Join Blair Young-Whitworth, Director of Family Education and Engagement at Courageous Parents Network, for an introduction to valuable resources designed to support families navigating the challenges of serious childhood illness […]

Call for Annual “Faces of SCN8A” Banner Submissions Every year TCSF creates a banner with photos of all SCN8A patients who submit a current photo. The banner is displayed at […]