Wherever you are in your SCN8A journey, we’re glad you found us.
Join Our SCN8A Community
Facebook Support Group
The SCN8A community is connected through a private Facebook support group created by SCN8A parent Juliann Bradish, PharmD. Open to individuals with SCN8A-related disorders, parents, and legal guardians, the group is a welcoming space to connect, ask questions, and share experiences. More than 665 families from 43 U.S. states and 64 countries are part of this global community.
To connect with other SCN8A families, fill out the form below to join the TCSF Family Network, then click the link below to request access to the private support group.
TCSF Family Network
By filling out the form below, you will be added to the TCSF Family Network, connecting you with a supportive community of patients and caregivers. As a member, you will receive email newsletters with important updates on educational programming, grants, clinical trials, Cute Connections meetups, our Annual Gathering, and other valuable resources to support your journey.
The information collected by The Cute Syndrome Foundation will not be sold or distributed outside of TCSF and is used solely to verify the identity of and communicate with TCSF Family Network members as needed. The TCSF SCN8A Families Support Group is open to any patient, parent, or legal guardian who is interested in learning more about SCN8A and supporting our community of families.