Living with SCN8A often means spending hours navigating insurance companies, coordinating medical care, sending difficult emails to doctors, completing paperwork, and managing countless other tasks that most people never see. […]
Our virtual Bereavement Support Group offers a compassionate, confidential space for bereaved parents to connect with others who understand the unique experience of grief after losing a child to an […]
Join the TCSF Book Club for an engaging discussion on our latest book selection! Whether you’re an avid reader or just looking to connect with the SCN8A community, this is […]
Description:Take a break and join us for our monthly Chaos, Coffee & Chitchat Club! This hour-long, volunteer-led meetup is designed for SCN8A caregivers to come exactly as you are—no structure, […]
Description: Living with 8A often means spending hours navigating insurance companies, coordinating medical care, sending difficult emails to doctors, completing paperwork, and managing countless other tasks that most people never […]
Description: Join the TCSF Book Club for an engaging discussion on our latest book selection! Whether you’re an avid reader or just looking to connect with the SCN8A community, this […]
Join The Cute Syndrome Foundation’s 12th Annual Virtual Run, Roll & Stroll! Walk, run, or roll 1 mile or a 5K from anywhere, on your own time, while raising awareness […]
Those who have lost a child to SCN8A are invited to join us for a heartfelt conversation. Whether it’s reaching out to a friend, navigating family dynamics, or just saying […]
Join TCSF and Dr. Sunanjay Bajaj to learn about a study exploring the non-seizure symptoms of SCN8A-related disorders, including movement, behavior, and communication. Dr. Bajaj will explain what researchers hope […]
Join Blair Young-Whitworth, Director of Family Education and Engagement at Courageous Parents Network, for an introduction to valuable resources designed to support families navigating the challenges of serious childhood illness […]
Call for Annual “Faces of SCN8A” Banner Submissions Every year TCSF creates a banner with photos of all SCN8A patients who submit a current photo. The banner is displayed at […]
Take a break and join us for our monthly Chaos, Coffee & Chitchat Club! This hour-long, volunteer-led meetup is designed for SCN8A caregivers to come exactly as you are—no structure, […]