Hosted by Heather Bentley of Writing for Rare, and featuring Dr. Nicole Cobo (Neurologist), Marcy Hoang (SCN8A caregiver) and Xuan Hoang (SCN8A warrior). When her daughter Xuan turned 19, Marcy knew she couldn't put off finding an adult neurologist much longer. She did her research and made an appointment with a local specialist who she'd […]
Take a break and join us for our monthly Chaos, Coffee & Chitchat Club! This hour-long, volunteer-led meetup is designed for SCN8A caregivers to come exactly as you are—no structure, no agenda, just space to connect with others who truly understand. Whether you're juggling appointments, sipping coffee in pajamas, or just need to be around […]
No assigned book this month, just a chance to reconnect! Join your TCSF Book Club friends to catch up, share what you've been reading, and tell us how your summer has been. Whether you've finished five books or haven't opened one yet, we'd love to see you for some relaxed conversation and connection.
If your family would like to attend the 2026 SCN8A Clinician, Researcher, and Family Gathering in Denver, Colorado, on December 4-5, but needs help with travel costs, we encourage you to apply for the Dr. Mandy Harris Travel Grant. Visit the Travel Grant page for additional details. Applications are open from August 1st to September […]
Join us anywhere, anytime between October 3rd and October 31st, 2026, for a 5K or 1-mile virtual race for SCN8A awareness!
Take a break and join us for our monthly Chaos, Coffee & Chitchat Club! This hour-long, volunteer-led meetup is designed for SCN8A caregivers to come exactly as you are—no structure, no […]
Living with SCN8A often means spending hours navigating insurance companies, coordinating medical care, sending difficult emails to doctors, completing paperwork, and managing countless other tasks that most people never see. […]
Our virtual Bereavement Support Group offers a compassionate, confidential space for bereaved parents to connect with others who understand the unique experience of grief after losing a child to an […]
Join the TCSF Book Club for an engaging discussion on our latest book selection! Whether you’re an avid reader or just looking to connect with the SCN8A community, this is […]
Description:Take a break and join us for our monthly Chaos, Coffee & Chitchat Club! This hour-long, volunteer-led meetup is designed for SCN8A caregivers to come exactly as you are—no structure, […]
Description: Living with 8A often means spending hours navigating insurance companies, coordinating medical care, sending difficult emails to doctors, completing paperwork, and managing countless other tasks that most people never […]