Hosted by Heather Bentley of Writing for Rare, and featuring Dr. Nicole Cobo (Neurologist), Marcy Hoang (SCN8A caregiver) and Xuan Hoang (SCN8A warrior). When her daughter Xuan turned 19, Marcy knew she couldn't put off finding an adult neurologist much longer. She did her research and made an appointment with a local specialist who she'd […]
Take a break and join us for our monthly Chaos, Coffee & Chitchat Club! This hour-long, volunteer-led meetup is designed for SCN8A caregivers to come exactly as you are—no structure, no agenda, just space to connect with others who truly understand. Whether you're juggling appointments, sipping coffee in pajamas, or just need to be around […]
No assigned book this month, just a chance to reconnect! Join your TCSF Book Club friends to catch up, share what you've been reading, and tell us how your summer has been. Whether you've finished five books or haven't opened one yet, we'd love to see you for some relaxed conversation and connection.
Join us anywhere, anytime between October 3rd and October 31st, 2026, for a 5K or 1-mile virtual race for SCN8A awareness!