BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//The Cute Syndrome Foundation - ECPv6.18.0//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://thecutesyndrome.com
X-WR-CALDESC:Events for The Cute Syndrome Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260707T173000
DTEND;TZID=America/New_York:20260707T183000
DTSTAMP:20260731T144354Z
CREATED:20260731T144354Z
LAST-MODIFIED:20260731T144354Z
UID:1520-1783445400-1783449000@thecutesyndrome.com
SUMMARY:Meaningful Change Series Session 3 | Co-Creating a Relationship of Care
DESCRIPTION:Hosted by Heather Bentley of Writing for Rare\, and featuring Dr. Nicole Cobo (Neurologist)\, Marcy Hoang (SCN8A caregiver) and Xuan Hoang (SCN8A warrior).\n\n\n\nWhen her daughter Xuan turned 19\, Marcy knew she couldn’t put off finding an adult neurologist much longer. She did her research and made an appointment with a local specialist who she’d met at an Epilepsy Foundation event. But when the day came for the appointment\, the doctor didn’t seem to hear anything Marcy was saying. He recommended repeating tests to confirm things Marcy had already explained to him. She started the neurologist search again\, and in February Xuan had her first visit with Dr. Nicole Cobo.\n\n\n\nIn this Meaningful Change session\, Marcy\, Xuan\, and Nicole will share their perspectives on what makes the provider – patient – caregiver relationship successful and what gets in the way. Families will hear how they are building a care relationship meant to last\, as well as practical recommendations for better healthcare interactions\, including pharmacy and insurance tips.\n\n\n\nREGISTER FOR MEANINGFUL CHANGE
URL:https://thecutesyndrome.com/event/meaningful-change-series-session-3-co-creating-a-relationship-of-care/
CATEGORIES:Virtual Family Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260710T120000
DTEND;TZID=America/New_York:20260710T130000
DTSTAMP:20260731T144316Z
CREATED:20260731T144249Z
LAST-MODIFIED:20260731T144316Z
UID:1517-1783684800-1783688400@thecutesyndrome.com
SUMMARY:Coffee & Chitchat Club
DESCRIPTION:Take a break and join us for our monthly Chaos\, Coffee & Chitchat Club! This hour-long\, volunteer-led meetup is designed for SCN8A caregivers to come exactly as you are—no structure\, no agenda\, just space to connect with others who truly understand. Whether you’re juggling appointments\, sipping coffee in pajamas\, or just need to be around people who “get it\,” this is your time. \n\n\n\nPop in for a few minutes or stay the full hour—we’d love to see you. \n\n\n\n\nREGISTER FOR COFFEE & CHITCHAT
URL:https://thecutesyndrome.com/event/coffee-chitchat-club/
CATEGORIES:Virtual Family Events
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260727T200000
DTEND;TZID=America/New_York:20260727T210000
DTSTAMP:20260731T144228Z
CREATED:20260731T144228Z
LAST-MODIFIED:20260731T144228Z
UID:1515-1785182400-1785186000@thecutesyndrome.com
SUMMARY:Virtual Book Club - Summer Check-In
DESCRIPTION:No assigned book this month\, just a chance to reconnect! Join your TCSF Book Club friends to catch up\, share what you’ve been reading\, and tell us how your summer has been. Whether you’ve finished five books or haven’t opened one yet\, we’d love to see you for some relaxed conversation and connection.\n\n\n\nREGISTER FOR BOOK CLUB
URL:https://thecutesyndrome.com/event/virtual-book-club-summer-check-in/
CATEGORIES:Virtual Family Events
END:VEVENT
END:VCALENDAR