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X-ORIGINAL-URL:https://thecutesyndrome.com
X-WR-CALDESC:Events for The Cute Syndrome Foundation
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261115
DTEND;VALUE=DATE:20261116
DTSTAMP:20261101T181326Z
CREATED:20261101T180119Z
LAST-MODIFIED:20261101T181326Z
UID:2729-1794700800-1794787199@thecutesyndrome.com
SUMMARY:Deadline: Nominate Your Clinician
DESCRIPTION:Nominate your doctor for the Champions for Understanding\, Treating\, Investigating\, and Empowering those with SCN8A (CUTIES) Award. This award will be presented to a clinician who has: Exceeded expectations of his/her practice or profession\, made a significant difference in the life of a patient or caregiver\, contributed substantially to the SCN8A community through community service or support\, provided high level leadership to TCSF\, and/or fostered the spread of knowledge of SCN8A.\n\n\n\nNominations are due by November 15th. Click here to submit.
URL:https://thecutesyndrome.com/event/deadline-nominate-your-clinician/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261116T090000
DTEND;TZID=America/New_York:20261116T170000
DTSTAMP:20261009T171236Z
CREATED:20261009T171236Z
LAST-MODIFIED:20261009T171236Z
UID:2677-1794819600-1794848400@thecutesyndrome.com
SUMMARY:Epilepsy Awareness & Education Expo
DESCRIPTION:People of all ages with epilepsy and their families and friends are invited to attend the Epilepsy Day at Disneyland Expo\, featuring non-Profit support groups\, epilepsy centers\, drug and related product manufacturers\, seizure dogs and their trainers\, and epilepsy professionals from around the world. \n\nCome by the expo to visit The Cute Syndrome Foundation’s table and meet TCSF volunteers!
URL:https://thecutesyndrome.com/event/epilepsy-awareness-education-expo/
LOCATION:Disneyland Hotel Convention Center\, 1150 W. Magic Way\, Anaheim\, CA\, 92802\, United States
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DTSTART;TZID=America/New_York:20261117T090000
DTEND;TZID=America/New_York:20261117T170000
DTSTAMP:20261009T171455Z
CREATED:20261009T171455Z
LAST-MODIFIED:20261009T171455Z
UID:2682-1794906000-1794934800@thecutesyndrome.com
SUMMARY:Epilepsy Awareness & Education Expo
DESCRIPTION:People of all ages with epilepsy and their families and friends are invited to attend the Epilepsy Day at Disneyland Expo\, featuring non-Profit support groups\, epilepsy centers\, drug and related product manufacturers\, seizure dogs and their trainers\, and epilepsy professionals from around the world. \n\nCome by the expo to visit The Cute Syndrome Foundation’s table and meet TCSF volunteers!
URL:https://thecutesyndrome.com/event/epilepsy-awareness-education-expo-2/
LOCATION:Disneyland Hotel Convention Center\, 1150 W. Magic Way\, Anaheim\, CA\, 92802\, United States
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DTSTART;TZID=America/New_York:20261118T120000
DTEND;TZID=America/New_York:20261118T130000
DTSTAMP:20261023T185726Z
CREATED:20261023T185726Z
LAST-MODIFIED:20261023T185726Z
UID:2698-1795003200-1795006800@thecutesyndrome.com
SUMMARY:Community Power Hour\, Wednesday\, November 18th\, 12pm EST
DESCRIPTION:Living with 8A often means spending hours navigating insurance companies\, coordinating medical care\, sending difficult emails to doctors\, completing paperwork\, and managing countless other tasks that most people never see. These responsibilities can feel overwhelming—but they don’t have to be faced alone. \nCommunity Power Hour is a virtual coworking session that offers accountability\, connection\, and moral support while you tackle whatever is on your to-do list. Whether you’re making an important phone call\, organizing medical records\, catching up on emails\, working on a project\, or even folding laundry\, you’ll be joined by others who understand the unique realities of life with 8A. \nWe’ll start with a brief check-in to share our goals\, spend about 45–50 minutes working independently together\, and finish with a quick wrap-up to celebrate our progress. Sometimes\, simply knowing others are working alongside you is all the encouragement you need.
URL:https://thecutesyndrome.com/event/community-power-hour-wednesday-november-18th-12pm-est/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261130T200000
DTEND;TZID=America/New_York:20261130T210000
DTSTAMP:20261023T190021Z
CREATED:20261023T190021Z
LAST-MODIFIED:20261023T190021Z
UID:2702-1796068800-1796072400@thecutesyndrome.com
SUMMARY:Book Club\, Monday\, November 30th\, 8pm ET
DESCRIPTION:Join the TCSF Book Club for an engaging discussion on our latest book selection! Whether you’re an avid reader or just looking to connect with the SCN8A community\, this is a great way to unwind and share thoughts. Check the support group for the latest book announcements and discussion topics! \nIf you’d like help obtaining a copy\, you can request your preferred format (electronic\, paper\, or audio) here:  https://form.jotform.com/250905137276054
URL:https://thecutesyndrome.com/event/book-club-monday-november-30th-8pm-et/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261204
DTEND;VALUE=DATE:20261206
DTSTAMP:20260823T194708Z
CREATED:20260823T194635Z
LAST-MODIFIED:20260823T194708Z
UID:2188-1796342400-1796515199@thecutesyndrome.com
SUMMARY:2026 SCN8A Annual Gathering
DESCRIPTION:Join us in Denver\, CO\, on December 4th-5th\, 2026\, for the 2026 SCN8A Annual Gathering! Check out the Annual Gathering page for more information.
URL:https://thecutesyndrome.com/event/2026-scn8a-annual-gathering/
LOCATION:Embassy Suites Downtown Denver Convention\, 1420 Stout St\, Denver\, CO\, 80202\, United States
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