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UID:2721-1793491200-1796083199@thecutesyndrome.com
SUMMARY:Epilepsy Awareness Month
DESCRIPTION:Epilepsy affects many individuals and families in our SCN8A community\, shaping daily life in ways both seen and unseen. This month\, we’re raising awareness by creating special profile frames and collecting and sharing stories from our community. We invite you to share a photo\, a challenge you’ve faced\, a milestone you’ve celebrated\, or something you wish others understood about living with epilepsy. Together\, we can help the world see the people and families behind the diagnosis. \n\nSubmit your story: form.jotform.com/Frappier/-epilepsy-awareness-month\nCreate a social media profile frame: canva.link/cfuq0s9rhh3av2a
URL:https://thecutesyndrome.com/event/epilepsy-awareness-month/
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DTSTART;TZID=America/New_York:20261118T120000
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UID:2698-1795003200-1795006800@thecutesyndrome.com
SUMMARY:Community Power Hour\, Wednesday\, November 18th\, 12pm EST
DESCRIPTION:Living with 8A often means spending hours navigating insurance companies\, coordinating medical care\, sending difficult emails to doctors\, completing paperwork\, and managing countless other tasks that most people never see. These responsibilities can feel overwhelming—but they don’t have to be faced alone. \nCommunity Power Hour is a virtual coworking session that offers accountability\, connection\, and moral support while you tackle whatever is on your to-do list. Whether you’re making an important phone call\, organizing medical records\, catching up on emails\, working on a project\, or even folding laundry\, you’ll be joined by others who understand the unique realities of life with 8A. \nWe’ll start with a brief check-in to share our goals\, spend about 45–50 minutes working independently together\, and finish with a quick wrap-up to celebrate our progress. Sometimes\, simply knowing others are working alongside you is all the encouragement you need.
URL:https://thecutesyndrome.com/event/community-power-hour-wednesday-november-18th-12pm-est/
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