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X-WR-CALNAME:The Cute Syndrome Foundation
X-ORIGINAL-URL:https://thecutesyndrome.com
X-WR-CALDESC:Events for The Cute Syndrome Foundation
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DTSTART;VALUE=DATE:20261101
DTEND;VALUE=DATE:20261201
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UID:2721-1793491200-1796083199@thecutesyndrome.com
SUMMARY:Epilepsy Awareness Month
DESCRIPTION:Epilepsy affects many individuals and families in our SCN8A community\, shaping daily life in ways both seen and unseen. This month\, we’re raising awareness by creating special profile frames and collecting and sharing stories from our community. We invite you to share a photo\, a challenge you’ve faced\, a milestone you’ve celebrated\, or something you wish others understood about living with epilepsy. Together\, we can help the world see the people and families behind the diagnosis. \n\nSubmit your story: form.jotform.com/Frappier/-epilepsy-awareness-month\nCreate a social media profile frame: canva.link/cfuq0s9rhh3av2a
URL:https://thecutesyndrome.com/event/epilepsy-awareness-month/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261105
DTEND;VALUE=DATE:20261106
DTSTAMP:20261101T175713Z
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LAST-MODIFIED:20261101T175713Z
UID:2723-1793836800-1793923199@thecutesyndrome.com
SUMMARY:Deadline: Annual Gathering Family Registration
DESCRIPTION:Join The Cute Syndrome Foundation for our 12th Annual SCN8A Clinician\, Researcher\, and Family Gathering in Denver\, Colorado\, on December 4–5\, 2026! \nThis annual event brings together SCN8A families\, clinicians\, researchers\, and industry partners to share the latest research\, connect with one another\, and strengthen our community. Attendance is free for SCN8A families\, and a virtual option is available for those unable to join us in person. \nFamilies must register by November 5 to receive a free event shirt and welcome gift! Registration will remain open after November 5\, but shirts and welcome gifts may not be available for late registrants.
URL:https://thecutesyndrome.com/event/deadline-annual-gathering-family-registration/
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