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X-WR-CALNAME:The Cute Syndrome Foundation
X-ORIGINAL-URL:https://thecutesyndrome.com
X-WR-CALDESC:Events for The Cute Syndrome Foundation
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DTSTART;VALUE=DATE:20261001
DTEND;VALUE=DATE:20261101
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UID:2609-1790812800-1793491199@thecutesyndrome.com
SUMMARY:Virtual Run\, Roll\, and Stroll for SCN8A
DESCRIPTION:Join The Cute Syndrome Foundation’s 12th Annual Virtual Run\, Roll & Stroll! Walk\, run\, or roll 1 mile or a 5K from anywhere\, on your own time\, while raising awareness and funds for the SCN8A community. Register as an individual racer or create a team! Visit runsignup.com/tcsfrace to register.
URL:https://thecutesyndrome.com/event/virtual-run-roll-and-stroll-for-scn8a/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261021
DTEND;VALUE=DATE:20261022
DTSTAMP:20261009T175618Z
CREATED:20261009T175618Z
LAST-MODIFIED:20261009T175618Z
UID:2685-1792540800-1792627199@thecutesyndrome.com
SUMMARY:#StopSUDEP
DESCRIPTION:
URL:https://thecutesyndrome.com/event/stopsudep/
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DTSTART;TZID=America/New_York:20261021T120000
DTEND;TZID=America/New_York:20261021T130000
DTSTAMP:20260918T174847Z
CREATED:20260918T174847Z
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UID:2553-1792584000-1792587600@thecutesyndrome.com
SUMMARY:Community Power Hour\, Wednesday\, October 21st\, 12pm EST
DESCRIPTION:Living with 8A often means spending hours navigating insurance companies\, coordinating medical care\, sending difficult emails to doctors\, completing paperwork\, and managing countless other tasks that most people never see. These responsibilities can feel overwhelming—but they don’t have to be faced alone. \nCommunity Power Hour is a virtual coworking session that offers accountability\, connection\, and moral support while you tackle whatever is on your to-do list. Whether you’re making an important phone call\, organizing medical records\, catching up on emails\, working on a project\, or even folding laundry\, you’ll be joined by others who understand the unique realities of life with 8A. \nWe’ll start with a brief check-in to share our goals\, spend about 45–50 minutes working independently together\, and finish with a quick wrap-up to celebrate our progress. Sometimes\, simply knowing others are working alongside you is all the encouragement you need.
URL:https://thecutesyndrome.com/event/community-power-hour-wednesday-october-21st-12pm-est/
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