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X-ORIGINAL-URL:https://thecutesyndrome.com
X-WR-CALDESC:Events for The Cute Syndrome Foundation
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DTSTART;VALUE=DATE:20261001
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DTSTAMP:20260923T183952Z
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UID:2609-1790812800-1793491199@thecutesyndrome.com
SUMMARY:Virtual Run\, Roll\, and Stroll for SCN8A
DESCRIPTION:Join The Cute Syndrome Foundation’s 12th Annual Virtual Run\, Roll & Stroll! Walk\, run\, or roll 1 mile or a 5K from anywhere\, on your own time\, while raising awareness and funds for the SCN8A community. Register as an individual racer or create a team! Visit runsignup.com/tcsfrace to register.
URL:https://thecutesyndrome.com/event/virtual-run-roll-and-stroll-for-scn8a/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261015
DTEND;VALUE=DATE:20261016
DTSTAMP:20260929T202229Z
CREATED:20260929T201857Z
LAST-MODIFIED:20260929T202229Z
UID:2621-1792022400-1792108799@thecutesyndrome.com
SUMMARY:Deadline: Faces of SCN8A Banner Submission
DESCRIPTION:Call for Annual “Faces of SCN8A” Banner Submissions\n\n\n\n\n\nEvery year TCSF creates a banner with photos of all SCN8A patients who submit a current photo. The banner is displayed at the Annual SCN8A Researcher\, Clinician\, and Family Gathering\, as well as on social media. Please fill out this form and provide a photo even if you have done so in years past.\n\n\n\n\nTo our bereaved families: If your Angel passed away after the creation of our last banner\, you are welcome to submit the form and include your favorite photo of your child. Parents of Angels who already appear in the banner do not need to submit a new photo each year. TCSF will continue to use current Angel photos unless otherwise instructed by parents/guardians.\n\n\n\n\n\n\nPlease click on the link to submit your photo: https://form.jotform.com/262514380770254\n\n\n 
URL:https://thecutesyndrome.com/event/deadline-faces-of-scn8a-banner-submission/
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