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SUMMARY:Virtual Run\, Roll\, and Stroll for SCN8A
DESCRIPTION:Join The Cute Syndrome Foundation’s 12th Annual Virtual Run\, Roll & Stroll! Walk\, run\, or roll 1 mile or a 5K from anywhere\, on your own time\, while raising awareness and funds for the SCN8A community. Register as an individual racer or create a team! Visit runsignup.com/tcsfrace to register.
URL:https://thecutesyndrome.com/event/virtual-run-roll-and-stroll-for-scn8a/
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DTSTART;TZID=America/New_York:20261013T120000
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DTSTAMP:20261012T182148Z
CREATED:20260909T181626Z
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UID:2531-1791892800-1791896400@thecutesyndrome.com
SUMMARY:Webinar:  Research and Resources Roundtable Series | Navigating the Caregiving Journey with Courageous Parents Network
DESCRIPTION:Join Blair Young-Whitworth\, Director of Family Education and Engagement at Courageous Parents Network\, for an introduction to valuable resources designed to support families navigating the challenges of serious childhood illness and neurological conditions. Drawing from both her professional role and lived experience as a parent caregiver\, Blair will provide an overview of Courageous Parents Network (CPN) and NeuroJourney\, highlighting educational resources\, peer support opportunities\, and practical tools available to families throughout their caregiving journey.
URL:https://thecutesyndrome.com/event/webinar-research-and-resources-roundtable-series-navigating-the-caregiving-journey-with-courageous-parents-network/
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