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X-WR-CALDESC:Events for The Cute Syndrome Foundation
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DTSTART;VALUE=DATE:20260801
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UID:2173-1785542400-1788307199@thecutesyndrome.com
SUMMARY:Dr. Mandy Harris Travel Grant Application Period
DESCRIPTION:If your family would like to attend the 2026 SCN8A Clinician\, Researcher\, and Family Gathering in Denver\, Colorado\, on December 4-5\, but needs help with travel costs\, we encourage you to apply for the Dr. Mandy Harris Travel Grant. Visit the Travel Grant page for additional details. \nApplications are open from August 1st to September 1st. Notifications will be made on or before September 15th.
URL:https://thecutesyndrome.com/event/dr-mandy-harris-travel-grant-opens/
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DTSTART;TZID=America/New_York:20260819T120000
DTEND;TZID=America/New_York:20260819T130000
DTSTAMP:20260823T193531Z
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UID:2179-1787140800-1787144400@thecutesyndrome.com
SUMMARY:New! Community Power Hour
DESCRIPTION:Living with SCN8A often means spending hours navigating insurance companies\, coordinating medical care\, sending difficult emails to doctors\, completing paperwork\, and managing countless other tasks that most people never see. These responsibilities can feel overwhelming—but they don’t have to be faced alone. \nCommunity Power Hour is a virtual co-working session that offers accountability\, connection\, and moral support while you tackle whatever is on your to-do list. Whether you’re making an important phone call\, organizing medical records\, catching up on emails\, working on a project\, or even folding laundry\, you’ll be joined by others who understand the unique realities of life with SCN8A. We’ll start with a brief check-in to share our goals\, spend about 45–50 minutes working independently together\, and finish with a quick wrap-up to celebrate our progress. Sometimes\, simply knowing others are working alongside you is all the encouragement you need.
URL:https://thecutesyndrome.com/event/new-community-power-hour/
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